This excrutiating pain is dubbed the "Suicide Disease" for a reason. 25-38% of its victims ended up killing themselves over the constant pain and constant feeling of unrest.
In The News

Does Capitalism Yield Progress? | New Markets Expanding through 2026

So yesterday (really 4:00 this morning), I had been creating my first two posts on this blog. And, I got curious…

SIDE NOTE: Two things you will learn about me is that: 1. I might one day get killed due to my overwhelming curiosity about every topic under the sun, and 2.  I have an undying love for information. I need all the details. I need the latest information. Over the years, I have written for a number of news-related sites. And, that is what made me so good at what I did.

Now, back to the topic at hand.

I began asking myself that if I’m going to share my journey to help others, should I also share news stories with my audience? Afterall, this blog was created to inform. So, I headed over to Google, typed in “Trigeminal Neuralgia” and hit the “News” option. And, there it was, clear as day.

On August 28, 2018, someone put out a press release, detailing the market for Trigeminal Neuralgia and how there will be an uptick in demand through until 2026. This alerted me of a few different things. The first thing was that someone was trying to capitalize off of such a serious disease… my disease.  Another was that people, who don’t have TN will be diagnosed with it in order for companies to sell new pharmaceuticals since people are finding better alternatives in other health arenas. The other thought was that there will be many helpless souls, often desperate and unaware of the more “clean” route, who will be lining up to be taken advantage of. Many prescription drugs have worse side effects than long-term cures.

So, what did I do?

I immediately went to my support groups on Facebook and shared a press release that has been spreading like wildfire across the Internet. Many offered “mad faces” and “wow faces.” Some sent “crying tears.” But, then there were two…

They both rose some pretty good points. And, that has me thinking. Without capitalism, there would be no progress. Without investors, there would be no funding. There is no cure for TN and no singular medical treatment at this time. While some of us have found and created our own treatment plans, there are others that refuse to believe in the “hocus pocus” of essential oils, vitamins, plant-based diets and minerals. I mean, I get it — I was “one of those people.”

To be honest, that is their own downfall. It saddens me, and I do get emotional seeing others in pain — especially a pain that I can empathize with. But, maybe holistic healing is not in their cards, so medical treatment would be their only way. And, who knows, down the line, there may be a cure — and I can stop smelling like lemons and peppermint just to feel like a woman again. I’d love to save my money, instead of sinking it into treatment. I’m tired of being at an outing and having an attack if I forget to bring my oils with me or use them before I leave the house. And, I’m sick of feeling isolated in this world. Because outside of my virtual support group, it’s hard to find someone, who actually understands — without trying to have a peeing contest with me.

So, I guess that I am all for it. Besides, if someone can find a cure, they deserve to be paid very well. I take that back… handsomely well! When I have an attack, I’d probably make it rain $100 bills on someone if I had it and if they could make it stop! My TN sufferers, can I get an “Amen” or what?!

The other positive about this new market research is that it could lead to awareness. With awareness comes support. We won’t have to go to Facebook with our problems. Actually, I had to step out of my comfort zone in becoming part of that group. I’m a very private soul and barely share with the people I am closest to, so going into a support group was a fresh new experience for me. And, hey! I learned a lot. I have helped people, and they have helped me. In fact, those support groups are precisely what inspired this blog! And now, I’m coming at you all naked with my own truth… well, maybe not naked… but you get it!

Now, about this press release.

I hope you didn’t think I would make mention of it without reporting on it, as well. In the most cliché voice possible: “Click here to learn more about the TN Market going into 2026…”

And, I’m out!

 

Trigeminal Neuralgia | The Suicide Disease | TN Awareness | Chronic Face Pain
Welcome to My World

Welcome to My World | Sentenced to Life with the Suicide Disease

On December 16, 2017, I got my answer. I finally found out why I am in constant pain… why I scream like a demon, crying and throwing things. I found out why I can’t concentrate, why there feels like huge parasites eating their way through my brain. I found out why I am overstimulated just laying down staring at a wall. I found out so many things. And, then I found relief!

Yes, you heard that right! I have found relief.  Well, more like intermittent remission… But, hey, LIFE does go on. And, it feels great!

If you’re reading this, it is my guess that you:

  1. Just found out you have “TN,” Trigeminal Neuralgia for short.
  2. Know someone, who has it, and want to find out more.
  3. Think you might have TN

…or…

You are so just sick of living with this disease that you are searching the web for about the millionth time, seeking a cure that simply does not exist!

 

If you are any of these people, please bear with me, as I share my personal journey through this living Hell and give some insight that might help you find your own relief.

Keep in mind, not everyone is “wired (literally)” the same. So, not everything on this blog will work for you. For me, it took a combination of things, all at once, to finally turn on the switch to healing. I had to learn my triggers. I had to learn a somewhat new way of life. And, I had to throw traditional medicine out the damn window to do it!

While I’m not one of those people that shun medicine, I try to avoid it at all costs. To be perfectly honest — and those who have been living this nightmare can vouch for me in the comments — there is no cure. There isn’t even a clear treatment plan. Neurologists cost a crapload of money, and many of us do not qualify for certain insurances or disability.

Those of us, who break down to get the surgeries, experience different results. Some will find relief — but, usually only for a short period of time (any relief is worth it!). I have met those that have received the surgeries and have had damaged nerves, found no relief and/or are worse off than they were to begin with. And, unfortunately, the same goes for the medicines that they will give you.

Because there are no medicines specifically designed for Trigeminal Neuralgia, many are prescribed seizure medicines with a disclaimer that they aren’t meant for this specific disease. What usually happens is when pain pills don’t work, we give in to the hope that anything is better than nothing. And, sometimes it is. But, this is almost always for the short-term.

I have met others with TN, mostly in Facebook support groups (shoutout to “Trigeminal Neuralgia Support Group” and “Trigeminal Neuralgia Support“), who will bluntly tell you that the medications they were prescribed made them “fat,” “lazy,” “unable to concentrate” and more! Some will tell you that they have had to double their dosages every few months before they have to give it up, because they simply do not work anymore. And, work! Do you know that this disease has cost so many people their jobs, livelihoods, families, independence and overall sense of pride that it is just devastating?

We have a rare disease. Some of us have more than one. Some of us even have rare strains of the rare forms of TN. I know I do. And, thanks to groups like Facebook… thanks to the amazing people in my life… thanks to ongoing research… I have taken back control of my life. While I may have a bad few days or weeks, once in a while, it’s only minor compared to the Hell I endured before knowing what it was that I even had.

I love to help others. I feel if we are given the tools and given the knowledge, we should share what we have learned. I hate the thought that 25-38% of us are known to commit suicide (I was almost a statistic.), thanks to this highly misunderstood, often misdiagnosed disease. I hate that many of us are told we are “making it up,” because you can’t see what we are feeling. I hate that it seems to attack the strongest individuals in society, the ones that used to live to make others smile, while now forcing a smile out, themselves.

Please stick around for a while, I have a lot to tell you. And, I hope you can put it to good use.

Yours truly,

Jessica N. Abraham, A TN Survivor